Future thinking on World Down Syndrome Day

One of the first things you have to come to grips with when you get a diagnosis of Down syndrome for your baby is your vision of the future. Most of us, whether consciously or not, imagine our children’s lives to follow a predictable arc. They have a lovely childhood, make great friends, make good grades, graduate from high school, then college, then find someone to marry, get a meaningful and lucrative job and have adorable children. Obviously, as a parent, your dream for them includes lots of success and very little hardship and failure.

In reality, none of us can predict the future for our children, intellectual disability or not. We can’t guarantee that they will be successful. If you’re really being honest with yourself, you probably have to acknowledge that your child will experience failure. That they will be lonely. That they will feel lost at times and wonder what the point of it all is. There will be many things that they will not be good at. All of these things are a very normal part of life. But when you’re holding that perfect little newborn, with all the possibilities and none of the limitations yet, you can imagine all the best. Over time, as your child grows and you come to know their strengths and weaknesses, you may edit your expectations. Your wildly creative and spontaneous little girl may not make the best lawyer. Your cautious and meticulous boy may not be cut out for high school sports. But that’s ok. You know their thing now and you can guide and support them in art classes or chess club. The loss of the “perfect” future is replaced by a more realistic and well-rounded vision.

When you’re given a diagnosis of Down syndrome (or I would imagine, many other conditions that fall under the category of “special needs”) that shift happens a lot faster. It can be rather jarring. As parents we are suddenly faced with all of the limitations at once, usually in the form of a very official looking medical fact sheet. But our baby is just a baby. We don’t know who they will become or what passions they will discover. We aren’t given a whole lot of information for the “pro” column of their imagined future. But we keep looking with faith and hope. Faith that every life is created for a reason and that our child will one day find their passion, purpose, and gift to give to the world. And hope that when they do, the world will be ready to receive it.

There’s a reason inclusion is the battle cry of anyone who works with special needs populations. I’m not sure that it’s so much to prepare the people with special needs for the real world, but to make sure the real world is a place that can be accepting and accommodating of the unique way they will interact with the world. Inclusion is needed not only for those being included, but for those of us doing the including. So when we are given the opportunity to be in a class or a work environment with a person with special needs, we know how to handle ourselves and interact in a way that doesn’t hinder anyone’s pathway to success. It would be a shame to miss out on all that people with special needs have to offer just because we don’t know how to receive it.

So much work is being done right now in the name of inclusion, from organized crusades to trailblazing individuals who show the rest of us everyday just what people are capable of. These people are paving the way for more opportunities and more acceptance of my daughter when she is gown up and ready to make her mark on the world. Here are a just a few places where I have found encouragement and examples to add to the pro column of my daughter’s future.

Ruby’s Rainbow – This organization provides college scholarships for students with Down syndrome. There are colleges across the country who are developing programs for these students to experience college life and all the education and independence that comes with it. Their biggest fund raising drive of the year is happening now if you feel inclined to support them financially.

Down Syndrome Association of Central Kentucky – Our local organization dedicated to supporting individuals with Down syndrome has a lot going on. I’ve been especially impressed with the stories I’ve heard from their “We Work!” program dedicated to training high schoolers for employment. Their recent class of graduates all have interesting and meaningful jobs or internships.

Brandon Lack Studio – I stumbled across this artist on Instagram one day and find him to be a inspiring example of the variety of gifts present in people with Down syndrome, just like in the rest of us. His art is lovely in and of itself.

Enjoying the Small Things blog by Kelle Hampton – A friend sent me a link to this blog when Poppy was first born, and I’ve been following along ever since. Down syndrome isn’t the only topic she writes about, but if you’re curious to get a peek into the life of a typical family who has a child with Down syndrome, this blog gives a pretty accurate picture. Hint: it’s mostly like every other family. :)

Happy World Down Syndrome Day!

66 Replies to “Future thinking on World Down Syndrome Day”

  1. Love it, Amy, the words and the photos!

    Our school is doing something tomorrow for World Down Syndrome Day to celebrate the kids at our school who were born with Down Syndrome.

    Rebecca says:
  2. Beautiful words, Amy. Thank you for the reminder that every life is truly a special gift.

    Darlene says:
  3. So well said. You’re a gifted writer and great mom. Hope it’s ok if I share this? So much better than I could have said.

    Beth Ann says:
  4. Thanks Amy for sharing your heart and opening doors of thinking and understanding for me!

    Kerry says:
  5. Академия web образования Visart http://v-i-s-a-r-t.ru/ это Обучение WEB профессиям,Интернет творчество, блоггинг и развитие Авторских проектов, Он-лайн ( on-line) Школы, +7 969-710-80-15. Заработок без вложений, Компьютер, хитрости интернета, соцсети

    Timothytwisy says:
  6. Celluvation. Регистрация. Купить. 3 новых продукта http://1541.ru – крем на лицо как Молодость, активатор стволовых клеток – гель, от боли-гель с программой CBD

  7. free online dating sites for women seeking women dating picture headshots new york
    is there a dating site for over 50 in australia 10 reasons why africa online dating is not good for you
    lesbian speed dating houston facts about dating in new york
    what to write on a profile for online dating best online dating sites for young singles
    50 lecelsof compatability dating dating a girl who cheated on her ex

    Craigclorb says:
  8. Hi
    I won’t say much, just leave this Microsoft product activator for you

    Whatever you have been looking for for a long time, a quality and working activator – I am sharing with you http://kmspico.pro

  9. Новые продукты компании http://tkfl777.com/cms/celluvation.php Celluvation: 1. Гель для кожи лица. Серебро + Youth + Факторы роста – Дорого!. 2. Активатор стволовых клеток – Гель. 3.Гель от боли с программой CBD

  10. Срочный ремонт iPhone, iPad и др. устройств Apple в Киеве Kyiv http://i7phone.com.ua в Украине Вы можете отправить нам на диагностику и ремонт в Сервисный Центр i7phone из любого региона Украины «Новой Почтой» 063-229-3386. how made, manual, мануал, инструкция, pad, качественный сервис по ремонту телефонов, быстрый ремонт телефона, m-fix, сервисный центр ipad, mfix, плохо работает тачскрин на ipad air 2, не работает сенсор на ipad air 2, замена стекла ipad, замена стекла samsung, ремонт телефонов украина, ремонт смартфонов киев, замена стекла iphone, замена стекла meizu, repair apple ipad mini, ipad mini, apple, ipad mini 5, ipad mini 2019, ipad, new ipad mini, apple ipad mini, apple ipad, apple pencil, ipad air, 2019 ipad mini, apple ipad mini 5, ios, ipad 2019, ipad mini 5 2019, ipad mini 5 review, ipad air 2019, ipad mini 4, iphone, review, ipad mini 5 vs ipad mini 4, ipad mini 5 unboxing, new ipad, ipad pro, ipad mini review, 2019 ipad, unboxing

  11. New MLM Project Celluvation http://eaccrc.com/evg7773 Youth. Brain. Energy Our Cellular Rejuvenation Beauty Crystals. Celluvation – Молодость кожи Youth

    Michaellor says:
  12. Самонесущие ограждения с точечными креплениями, устанавливается на торец лестницы на точечные крепления. Высота перила из стекла
    от 850 мм от уровня пола (комфортная высота для подъема взрослого человека – требования строительных ГОСТов).

  13. http://xn--80aal6ag5f2a.xn—-7sbafcvrd1a5e1e.xn--80adxhks Дешевые авиабилеты Адыяман – Москва, авиабилеты, авиабилеты москва, авиабилеты дешево, авиабилеты онлайн, купить авиабилеты, авиабилеты официальный сайт

    Willieheape says:
  14. Hello. I do not understand

    formats for research papers the essays of warren buffet resume writing business plan best creative writing websites article on homework current events assignment pop over to this website sample methodology section of research paper writing a concept paper

    HowardLayex says:
  15. Около 3-х месяцев назад думала выбить потреб кредит в Екатеринбурге, но нигде не могла получить, потому что иногда были проблемы по другому займу (тройку раз просрочила, но потом загасила даже раньше конца срока).
    Отказы либо не объясняли, либо говорили, что плохая кредитная история и ничего не поделаешь.
    В тот момент я о помощникам по кредиту даже не слышала.
    Вот недавно коллега на работе сказал, что есть такие организации, которые помогают взять деньги.
    К примеру вот эти (вроде говорят нормальные) – что скажете?
    Посмотрите ссылку:
    кредит Екб

Leave a Reply

Your email address will not be published. Required fields are marked *